Paediatric Haemoglobinopathy Clinical Nurse Specialist

Coordinate the care of haemoglobinopathy patients and promote good practice in the diagnosis and management of CYP with a haemoglobinopathy condition and their families. To provide CYP and staff with specialist advice to manage simple and complex symptoms To work collaboratively and share expertise within the multidisciplinary teams both locally and nationally. To act as a resource in the care of patients needs, ensuring an optimum level of service to patients and their families. To work closely with network, other hospital, and community staff to ensure an effective seamless service. To provide a high level of communication skills to enable effective and comprehensive care planning within the multi-disciplinary team. To build up a skill set to embed patient and public involvement within the sphere of specialist nursing practice. To ensure that CYP and their families are aware of all treatment options, including clinical trials To work as a patient advocate, to help negotiate the